Happy to Provide Information About Crohn's and IBD's

When I was first diagnosed with Crohn's, I wanted to learn as much about my disease as possible. I read hundreds of websites and started thinking that I was spending hours upon hours searching for more information.

That is the reason that I wanted to start this Blog.

I hope I can provide a source of information that touches on as many topics as possible. In my research I could not find a single source to gain basic knowledge about my condition. There are many good sources but sorting through all the Medical Terminology took time because I did not know the terms being used on many of the sites.

My goal here is to provide a good starting point for people that are interested in learning about Crohn's and Irritable Bowel Diseases.

Please comment and if you have questions, please ask.

Bob

Updated Pages

Be sure to check back often as I update the pages here with many informative subjects on Crohn's and IBD's

Getting Support

In the last several months, I have searched for support and groups that relate to Crohns.
One of my favorites is a free phone app called GI Monitor.

Support is an important part of living with IBD's. People that have the disease or are in remission understand the daily aches, pains and habits that we deal with on a daily and sometimes minute by minute basis.

GI Monitor allows you to track your IBD symptoms such as Stool form, frequency, blood content and add custom symptoms. The app also allows you to track meals, stress levels, pain levels and medications. The app also has a social feature that allows you to communicate with other sufferers of IBD.

The group, known as "Butt Book" is very knowledgeable and friendly group of people from all over the USA and the world. You can learn about symptoms, medications, treatments, tests and procedures that you or someone you love may encounter when dealing with any of the IBD's.
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You can search facebook for other social outlets and reference www.ccfa.org. Crohns Colitis Foundation of America is an excellent place to start learning about the disease and find local support groups and events.

Dining Out

Dining Out and What to Do

  

Eating out at restaurants or at social functions can be a tricky situation for people with inflammatory bowel disease (Crohn's disease and ulcerative colitis [IBD]). It is especially difficult when you are dining with people you have a professional or casual relationship with, since they are not likely to know about your health problems. (Nor would you necessarily want them to know.) How can you handle a high-powered business lunch or romantic dinner without bringing attention to your problem?

Before you leave for the restaurant, decide on what you will eat and how much you will eat. If you're afraid that you will be hungry and tempted to eat something you shouldn't -- have a safe snack before you leave.

·                           Is There A Special Diet For IBD?

Look At The Menu

If you know what restaurant you're going to, do a little reconnaissance first. Many restaurants and catering halls have web pages that include their menus. If you're really concerned, you can even call the restaurant and ask if they serve any dishes you know are "safe" for you to eat.

Locate The Restroom First

Ask the host or hostess where the restroom is located before you are seated or right after being shown to your table. If your dining companions don't know about your health problems, you can use the excuse of wanting to wash your hands before dinner. This way, you know where the facilities are located and you can check to be sure they're clean and stocked.

Skip The Cocktails

Alcoholic drinks may not be a good idea for people with IBD. Try sparkling water or a virgin cocktail (or a "mocktail") if you're concerned about appearing chic but don't want to drink. If you need an excuse, you can always say you're taking antibiotics or other medications that don't interact well with alcohol. Or there's always the old standby -- "I have to drive myself home so I'm not drinking."

Watch Out For Appetizers

Appetizers such as mozzarella sticks, hot wings, nachos, and chicken fingers are all fatty, fried or dairy-filled foods that might not be good to your digestive system. If everyone else is having an appetizer and you're feeling left out, have some soup instead or dig into the breadbasket.

·                           Low-Fat/Healthy Appetizers & Tips

Anticipate Any Awkward Questions

Not everyone is tactful. Someone may ask you "Why are you ordering chicken at a famous steakhouse?" Decide beforehand how you will answer. You could mention your illness briefly if you think it will be well received. If not, "I'm on a diet" or "I stopped eating red meat and dairy" are also common reasons that aren't likely to bring up more questions.

Amber Tresca was diagnosed with ulcerative colitis at the age of 16. After 10 years of active disease, medical therapy failed and she underwent the 2 step j-pouch surgery (removal of the large intestine and creation of an internal pouch from the last part of the small intestine).

Experience:

Amber was a copy editor and staff writer for a major medical publishing house that produces specialty medical journals for physicians. She is currently a group web producer for the same publisher, working on several web sites that provide clinical information for healthcare providers.

Education:

Amber graduated with a bachelor's degree in Environmental Science from the Lymann Briggs College at Michigan State University.

From Amber J. Tresca:

After my gastroenterologist found severe dysplasia in my colon, I realized how little I knew about my disease, and how dangerous that was to my health. I hope to raise awareness of inflammatory bowel disease (Crohn's disease and ulcerative colitis) and other digestive conditions, as well as reach out to patients like me who are in need of news and accurate information.